End-of-life care has been a hot topic of
debate for quite a while now, in many different contexts. With recent health
care delivery reforms, practitioners and policy makers have been debating the
pros and cons of making options like do not resuscitate (DNRs) more available instead
of spending thousands to prolong lives, usually not for very long, in
uncomfortable conditions. 75% of Americans die in a hospital bed, though most
would rather die at home, and there is debate as to whether the quality is more
important than quantity when it comes to life—adults should be encouraged to
think about their end-of-life options, write wills, and seek out DNRs while
they are still able-minded, so family members and physicians don’t have to make
these hard decisions later (usually unwanted prolongation of life).
Some may argue that “letting” patients amounts
to assisted suicide, and now a more explicit example of this “assisted suicide”
is being evaluated in the English judicial system. Tony Nicklinson, a
58-year-old stroke victim who now suffers from “locked-in syndrome,” or
complete paralysis from the neck down, has sought legal protection for any
doctor who may assist his suicide – although in his case, this would amount to
murder, as Nicklinson is incapable of performing any suicidal action. The case
will be heard in court, now that a judge has permitted it, and he and his wife
are getting the word out about their pursuit of the “right-to-die.” The
evaluation of this case requires not only a defining of the line between
assisted suicide and murder, but between end-of-life decisions like DNRs or
“pulling the plug” of unconscious patients and assisted suicides.
Suicide in our culture is a crime,
though often one without a defendant, and so assisting a suicide is also
criminalized. Why is this? Suicide is unacceptable and scary to us because it
is a reflection of our society; it reminds us that we live in a world that may
not be worth it, in communities that can make some devalue their life to
dangerous levels and may not offer enough support to those who are a hazard to
themselves. This is obviously different from the image of a beloved
grandparent, unconscious in a hospital, being kept alive by various
machines—but who has lived a full life, and whose natural time of passing has
clearly come. It’s a hard decision to make, and a hard time in any family, but
it is one that has come to be socially acceptable (although some argue the
decision to end life should come before one ends up uncomfortably hooked up to
countless tubes, and this can only happen if we as a society becomes more
comfortable the fact that everyone dies).
But
Nicklinson’s case is an ambiguity—he is not unconscious, and in some ways is
very much alive, his handicap being only a physical one (though very severe).
But he, in his aliveness and consciousness, wants the right to commit suicide,
and to seek out help should he make that decision but find himself incapable of
carrying it out. This is not the suicide we typically associate, which is often
seen as a tragic and irrational response to pressures that could have been
otherwise dealt with. This is a calculated decision which, while made under the
pressure of intense frustration and suffering, can be seen as a retroactive DNR
– Nicklinson himself said (through electronic boards—he cannot speak), “If I
had my time again, and knew then what I know now, I would not have called the
ambulance but net nature take its course.” Then there is the added complication
that a doctor would have to technically commit murder to respect his wishes,
which is both illegal and against the medical code of ethics. So, should
Nicklinson be allowed to commit suicide, given that he is currently alive and
as well as he can be, breathing, pumping blood, and thinking on his own, but requiring
assistance for essentially all other functions?
I
think if Nicklinson can get a loved one to assist him in his suicide, the
assistant should not be persecuted legally. We have to assume that, even if
Nicklinson’s judgment is clouded by his suffering, a loved one would be able to
judge the situation best, and would only help if he/she believed it was truly
the best decision. A doctor could not perform this function—death is still a
very personal matter in our society, and many of the issues with end-of-life
care is rooted in the fact that it is hard for any external, authority figure
(doctors, hospitals, the government) to interfere in something so personal. We
can never expect a doctor to go around performing assisted suicides, even after
careful consideration, and even if they believe the patient does have a “right-to-die,”
because doctors (in our society) have made a commitment to the right to life.
Legal protection for a loved one as an assistant to suicide (in a very clear,
almost public situation) may be called for, but protection for doctors in this
role is too big of a value shift. Doctors protect life until they can no
longer, and the only debate regarding end-of-life in this sense is how we
should define “can no longer extend life” (whether quality should come into
play), but they cannot “prematurely” end a life that is under no threat, no
matter how poor the quality of that life may be, without changing the role of
the doctor and opening entirely new ethical debates and “medical” practices.
http://www.bbc.co.uk/news/uk-17336774
http://www.cbsnews.com/video/watch/?id=6754650n&tag=contentBody;storyMediaBox
2 comments:
I absolutely agree that there is a difference between our traditional conception of suicide and the type of end-of-life decisions faced by Nicklinson and those making DNRs. We find suicide immoral (and, as a consequence, have made it illegal) because it destroys the potential of a life that could have been. Mental health campaigns remind us that it is a permanent problem to a temporary solution. This is the key point - the assumption that the issues driving an individual to suicide are temporary or surmountable. Witness the "It Gets Better" campaign that followed the rash of gay teen suicides in 2010 - the campaign urged those contemplating killing themselves because of bullying to survive until their torment would end.
Such arguments about impermanence are simply not applicable to cases like that of Mr. Nicklinson. It does not get better for him. We do not have the technology to correct locked-in syndrome, nor do we have hope of developing said technology in the near future. Similarly for elderly patients on extreme life support or the comatose - we simply cannot make the argument that their suicide would be sacrificing some valuable future. Their future is, to the best of our knowledge, going to be exactly the same as their present. A present in which they wish to die.
Refusing them that wish, then, seems to me immoral. We are effectively imprisoning them, not in a jail, but in their disabled state. Who are we to say that it is better for them to live in such a way? Why does our will get to be imposed over theirs? We cannot possibly understand things from their point of view, since we live in a world in which the future is one characterized by hope, or at least uncertainty. We should not let our view of what is right for ourselves prevent us from letting those like Nicklinson choose what they believe to be right for themselves.
Personally, I think that suicide as a retroactive DNR should be legalized, and you present an interesting argument for the protection of the assistant, but perhaps a better method is to attempt to remove most of the agency from doctors and other loved ones. Because we have a system by which immobile but mentally functioning people can communicate, could we not create a similar system where it is truly the person themselves pulling the plug? Or would setting up such a system be equivalent to assisting suicide? This leads to gray areas where a device set up for another function (i.e. a wheelchair) could be seen as an assist to a suicidal action. However, I think this is a good alternative way of thinking of things.
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