Saturday, April 26, 2008

Surprise! We “Saved” Your Life!

What if you were in a terrible car accident, and sustained life threatening injuries to your heart. In an effort to save you, doctors went to extreme measures, and implanted a left ventricular assist device, also referred to as an LVAD. What is an LVAD you ask? Well, it is a surgically implanted heart pump that is attached to one of the main pumping chambers of the heart and the aorta. The pump is attached to a tube that extends to the outside of your body, and attaches to a battery pack that you must carry around for the rest of your life. However, despite the fact that the LVAD has “saved” your life, what if you were paralyzed? What if you had burns over your body as a side effect of the accident? What if your body was altered in such a way that you no longer had the same quality of life as you did prior to the accident?

As bioethicist Katrina A. Bramstedt said, “Anytime you create new forms of life support, you create the possibility for new ethical dilemmas.” With the development of LVADs, a host of new ethical dilemmas have surfaced, especially for older patients who are actually affected negatively by the implantation of the LVAD. These cases typically deal with the debate about euthanasia. And in those cases, one can argue that the patient entered into the surgical procedure under fully informed consent (or at least as much consent as one can have in today’s society), and therefore they should not be granted the right to request that the pump be turned off by a physician because they were aware of the risks going into the procedure, and desired the continuation of their lives. But what about those that did not provide consent? Patients that were admitted as a result of emergencies, and then awoke to find their lives significantly altered, and saved only by the implantation of an LVAD.

Are these individuals allowed to then make the choice of whether they would like to end their lives? Perhaps this is simply a small detail in the greater argument of euthanasia, but then again maybe this difference is all that is needed to justify their request for their own death.

http://www.washingtonpost.com/wp-dyn/content/article/2008/04/23/AR2008042303534_pf.html

Thursday, April 24, 2008

DNA Tests Violate 5th Amendment?

In 1974, a man who came to be known as BTK strangled a family of four. He continued to kill for the nest 17 years claiming 6 more victims. However, he went silent after that, disappearing. He reappeared in 2004, hinting that he was about to strike again. Police managed to zero in on a man named Dennis Rader as their primary suspect. They had been able to obtain genetic samples from the crime scenes, and they hoped to link this DNA to Rader. Unfortunately they could not get DNA from Rader himself. However, Rader's daughter had had a pap smear in college, and the authorities subpoenaed it to obtain DNA. In the end, they used this as well as further evidence to convict Rader.
Most people see this as a triumph of genetic technology. However, privacy advocates see it as a dangerous trend that is continuing to violate our rights to privacy. When Rader's pap smear was subpoenaed, she was not consulted. Beyond violating her right to privacy, I believe that these actions also violated the 5th amendment. Since the evidence was something that only a family member could provide, the authorities would have had to get permission before using the evidence.

Tuesday, April 22, 2008

Lost In Translation?

We often discuss the ethics of medical experimentation. However, there are ethics involving human health beyond just the simple experimentation. Many do not have direct access to most studies in order to learn about the progress that has been made. The same holds true for scientific journal articles that can be very important to an individual’s health. The great majority of the population relies on journalists to honestly relay this information to them in terms they can understand.

But what happens when this is lost in translation? A famous case of this is a 1990’s story by Gina Kolata in which she speaks of a possible cancer cure. The study to which she refers, in which a cure for cancer had been found in mice, had been published months before and there was even a previous New York Times article on the topic. What was her motive for writing the article? Well, at a dinner earlier she overheard Nobel laureate James Watson say, “Judah’s going to cure cancer in two years!” This created a front pages story, where as the original was buried away in the inside of the paper. Her language in combination with the placement of the article seemed to create a rush of people to believe that a cure for cancer had been indeed found.

Was it ethically correct for her to write this article? She must have known that it would be misleading, as did the editors when they put it on the front page of the New York Times, the journalistic standard for the world. She had no incentive to write the story other than financial gain, a front- page story, and ONE new quote. It seems her motives were not sincere, in that she didn’t want to tell the public what they needed to know but instead chose to mislead them for her own gain. She even received a million dollar book deal on the topic. So my question is, do journalists, as simple “translators” have a moral responsibility that is unique to them, as doctors and researchers do? I personally do believe so.

Monday, April 21, 2008

Genetic Discrimination: Good or Bad?

After reading Alana’s research essay, Alex and I (not surprisingly) debated whether genetic discrimination is good or bad. As Alana’s paper suggests, genetic discrimination does not actually exist, meaning that the arguments proposed for and against genetic discrimination are completely theoretical and hypothetical. Whereas Alex believes that genetic discrimination would not necessarily result in a negative outcome, I disagree and contend that genetic discrimination can cause great harm.

As Alex suggests, the act of discrimination in itself is not immoral; the ethicality of discrimination and whether it is moral or immoral depends on the intent and source of the discrimination. By Alex’s view point, insurance companies stand to make a profit and have a right to assess the risks of acquiring a specific customer. Furthermore, insurance companies have no obligation to help people acquire medical care. Although I agree completely with Alex that genetic discrimination is a positive action from the viewpoint of the firm, I feel that genetic discrimination greatly harms the public.

As we all know, health insurance helps countless people afford expensive medical treatments and procedures that they would otherwise not be able to afford. Subsequently, as a result of health insurance, not only are many lives saved, but the quality of many lives is drastically improved. If people were denied health insurance, two problems would arise. First, because fewer people would be able to acquire health insurance, the quality of their health and subsequently the quality of their lives could be compromised. Secondly, people who are allowed to apply for health insurance would have to pay larger payments in order to compensate for the smaller number of consumers.

For arguments sake, however, let us assume that “healthy” individuals (those that do not have “diseased” genes) continue to apply for health insurance while “diseased” individuals cannot obtain health insurance. Currently, according to American laws, if a “diseased” individual without healthcare were to go to the hospital in need of healthcare, doctors would have an obligation to care for the patient regardless of whether the patient could afford the treatment. If the patient had health insurance, the doctor would receive the appropriate payment for his services. If the patient did not have health insurance, however, and could not afford the procedures, the doctor essentially loses a profit. In such a scenario the existence of genetic discrimination creates a negative externality that can severely harm physicians. Even if the government were to step in and provide more health insurance (beyond Medicare and Medicaid), although the doctors would benefit, the economy could suffer; in order to increase finances, the government would need to siphon money from some other program or raise taxes, two situations that could be avoided if people were allowed health insurance.

Although I concede that genetic discrimination from some view points (namely the viewpoint of insurance companies) is a good thing, I believe that genetic discrimination from the point of view of a patient and from the point of view of a physician has negative consequences. I realize that genes are not completely deterministic and that the degree of genetic discrimination may not be as great as I portray it, but nonetheless patients would feel violated and immorally treated if they were denied health insurance on the basis of their genes.

Quarantines in the US

Idea from http://www.wired.com/medtech/health/news/2007/06/quarantine_law: 

After reading about the quarantines of XRS-TB carriers in Africa, I wanted to find out more about the quarantine laws in the US.  This recent article stated that the meat of our quarantine laws has not changed from the 19th century, when quarantines were much more common because of the prevalence of some dangerous infectious diseases and because of the lack of medicine to treat some diseases.  

Now the controversy is over whether our government should be allowed to gain more access to flight information in order to potentially inform people if they have been infected with something.  Though the ACLU has some problems with the government having access to this information and the airline companies are worried that the increased bookkeeping will drastically increase their functioning costs, I think that the government has a right to demand these records in an effort to protect it's people.  

Even though it is never the best idea for a government to have all the information on all of its citizens, in this case the government would only be able to access the information if the crisis arose.  It's a win-win situation: if they need to know who was on a flight and this information would help more people, they could get it, but otherwise no one's privacy is invaded.  The problems will arise in enforcing the restriction of access to flight information, but I feel that airlines will have an economic incentive to protect their passengers' privacy.  I think that if the enforcement is in the airlines' hands it will go much smoother than if it is in the government's hands.  


On the Legality of Waterboarding

War is undoubtedly one of the largest fronts under which unethical practices are carried out. Historically, both prisoners and soldiers have unwillingly and unknowingly been used as human guinea pigs, testing anything from nuclear fallout to mustard gas. While we would like to think the mistakes of the past are long gone, such ethically questionable practices still exist today. Take for example the case of waterboarding. Waterboard is a process wherein a prisoner is strapped to a board and has water poured into their mouth and breathing passages. This simulates the experience of drowning and elicits a gag reflex instantaneously, causing severe psychological pain to the victim. The experience is so severe and real that some victims could no longer take showers or walk in the rain. Although waterboarding does not necessarily cause permanent physical damage, it can lead to lung or brain damage or death.

Currently, President Bush is defending the use of waterboarding in obtaining information from captives. Although torture is illegal according to the Geneva Conventions, Bush's administration has redefined what constitutes torture to exclude waterboarding, rendering it lawful (it is now an 'enhanced interrogation technique'). The use of torture to obtain information can be a tricky issue. In times of war, if one side is using torture to obtain information and the other side is not, the side using torture will naturally gain an information advantage. However, this should not be an issue in modern times, when the U.S. has the strength to lead the world without resorting to practices such as waterboarding. In fact, the U.S. has been setting a worldwide example for over 200 years by habitually treating captives with humanity and dignity. There's no reason why this should change now.

Articles:
http://www.catholic.org/diocese/diocese_story.php?id=27616
http://www.guardian.co.uk/world/2008/apr/18/usa.terrorism

Lemon Organs

Previously, the term “lemon” has been applied primarily to used cars that the buyer only discovers to be of an unsatisfactory quality after the purchase has occure. Well what if you receive a transplanted organ that turns out to be not exactly what you signed up for?

This is exactly what happened to the four people who received 15-year-old Alex Koehne’s pancreas, liver, and two kidneys. Alex’s parents agreed to donate Alex’s organs when they discovered that his death was imminent. It was originally believed that Alex died of bacterial meningitis, but only upon autopsy did Alex’s parents and doctors discover that his actual cause of death was a rare form of lymphoma. Subsequently, the two people who received Alex’s liver and pancreas died of the same lymphoma, and the two people who received his kidneys are being treated for the disease.

Other recent organ transplant mishaps include a man who received a cancerous lung, and people who have received organs infected with West Nile Virus, hepatitis C, and even HIV.

How can this have happened?

The organization that organizes organ donation in the United States, the United Network for Organ Sharing, requires that all organs be screened for cancer, HIV, and other infections prior to donation. In addition, the Center for Disease Control mandates tests for HIV, hepatitis, syphilis, and other bacterial or viral infections on organs from “high-risk” individuals, as well as having a doctor determine from medical records whether the organ donor might have cancer.

Most organ transplants are safe: out of the 230,000 transplants performed between 1994 and 2006 on 64 recipients developed cancer because of receiving a “lemon” organ, as I have termed it.

However, there is always the possibility of some cancer or infection going undetected. I would urge hospitals to increase the strictness of their organ donor standards, as they are free to do. Such a move would benefit everyone because the minor inconvenience of running a few more tests and doing a more thorough background check is far smaller than the hassle of getting entangled in endless lawsuits over whose fault it is that someone received a “lemon” organ.

Sources:
http://blogs.discovermagazine.com/discoblog/2008/04/08/organ-transplants-gone-horribly-awry/
http://discovermagazine.com/2008/apr/16-how-do-transplant-patients-wind-up-with-deadly-diseased-organs

State Autonomy vs. Protection of the Global Community

The avian flu virus has many different forms around the globe, as a result of mutations for adopting to different environment. The Indian avian flu virus has been found to be the most deadly (mortality rate of 80%.) Therefore, making the Avian Flu virus found in India available to the international community is crucial for developing a vaccine that can prevent epidemic outbreaks such as the Black Death during the fourteenth century. India, however, has refused to share this information to the global community for a good legitimate reason: the vaccines being developed has already been contracted out to the developed nations – most certainly not India. In May, 2007, India finally adhered to the request for the Avian Flu virus genetic information, but only after WHO (World Health Organization) made the promise to the government of India that they will sponsor creation of a global stockpile of pandemic vaccines that will be made available to developing nations as well. WHO criticized such move by India, claiming that “the public health security of the whole world [was] at risk” as a result of the Indian government withholding the genetic information of the most deadly form of Avian Flu virus in the world. On the other hand, the Indian government called upon the Convention on Biological Diversity which articulates the states’ autonomy over genetic information.

This specific case raises the question of individual rights vs. protection of the public (something we have been discussing with relation to vaccination) on a global and national scale. Does the international regulatory body such as WHO have the right to make it compulsory for nations to share information crucial for advancing research for medicines that will be used by the countries? Does the question of autonomy vs. sacrifice for the greater good have a different bearing on the national/global level versus the individual/micro-societal level?

Source: Caplan, Arthur L., and David R. Curry. "Leveraging Genetic Resources or Moral Blackmail? Indonesia and Avian Flu Virus Sample Sharing." The American Journal of Bioethics 7(2007): 1-2.

Tuesday, April 15, 2008

Concerns of Vaccination

In the year 2000, Hannah Poling of Athens, Georgia, received five routine immunizations to protect her against nine infectious diseases. After receiving the vaccine, Hannah became sick two days later and was diagnosed in 2001 as autistic. Hannah’s parents sued the government, claiming that the vaccines somehow caused the autism, and they reached a settlement.

This case, and in particular the settlement of the government, raises concerns about the relationship between childhood vaccines and autism. John Gilmore, the executive director of Autism United, said, “This decision gives people significant reason to be cautious about vaccinating their children.” Gilmore’s son faced the same predicament as Hannah, and he has sued the government as well.

Dr. Jon Poling, neurology resident at Johns Hopkins Hospital at the time and Hannah’s father, explained that Hannah was later found to have a mitochondrial disease. Such a disease can lie dormant until stimulated by a vaccination, which is what the government believed happened. Hannah’s mother acknowledged that this is a possibility, but there is no evidence that Hannah had this disease before the vaccines. She also explained that there is a second explanation for Hannah’s autism: the vaccines.

In either case, the vaccine did somehow either provoke or create Hannah’s autism. Whether directly or indirectly (by means of the mitochondrial disease), the government-required vaccines adversely affected Hannah’s development. Although there may be no direct proof that the vaccines causes autism, this does give one reason to question the safety and effects of vaccines, especially because such vaccines are given to every child in the country, and to many in the world. If there is a problem with a vaccine, particularly with a new vaccine where the long-term effects are unknown, an entire country of children could face debilitating side-effects. This is one of many concerns with the HPV vaccine and one reason why many parents are hesitant to allow their children to receive a relatively new vaccine. Even though cases such as Hannah’s are rare, they do exist, and do justify some concern over mandatory vaccinations.

Practicality vs. Morality?

I began wondering about practicality in relation to ethics and morality last class, in the discussion of destroying embryos to harvest stem cells. I am still pondering the question: if an action is unethical but practical, which takes precedent?

There were two situations that Alex, Mike and I were talking about the other day: 1) A train is going to crash, killing all 5 of its passengers. But you have the power to change its track thus saving the train and its 5 passengers, but in doing so, you will kill 1 person who is stuck on that track. Practically, you would change the track, thus saving 5 lives and killing one, rather than doing nothing where you save one life but kill 5. Ethically it is more complicated: by actually changing the track, are you murdering that 1 person? By doing nothing, are you murdering 5 people? To me it seemed that generally, most people would change the track, sacrificing one person to save 5 in the name of practicality.

Mike then informed us of a similar situation in which there are five people in need of organs, they will die if they don't receive them. There is one perfectly healthy man with all the needed organs, but he will die if he donates them all. Does the doctor kill the healthy man to harvest the organs to save the 5 lives? In this situation, it seems that ethics trumps practicality, because hardly anyone would advocate such an act.

How can these situations be applied to the destruction of embryos? It is practical to destroy the embryos because they are going to die anyways; it makes practical sense to use them for a greater cause. Ethically, it is quite different for all the reasons we have discussed.

I tend to lean towards practicality over ethics in realistic situations. I would not consider the doctor intentionally harvesting 5 organs from a healthy person a realistic situation. In certain situations, practicality must trump ethics.

Monday, April 14, 2008

Continue study of AIDS vaccine that makes you even more likely to contract HIV?

I recently stumbled upon another article involving ethics and an AIDS vaccine. The author stated that he believed despite studies showing that a specific AIDS vaccine could have increased the risk of HIV in trial participants, we should forge ahead with research and not look back. I should not have been surprised to learn that the author was the controversy-stirring Arthur Caplan.

Over two years ago, Merck Pharmaceuticals and the National Institute of Health announced the creation of a breakthrough vaccine. This vaccine was marketed to be different and more effective than any other AIDS vaccine available. However, it was learned at the end of last year that the vaccine did not come close to achieving the claims set forth. In fact, after testing the vaccine on 3,000 trial participants, it was learned that some may have developed HIV and died because of the vaccine.

Caplan acknowledges that this is an ethical problem but quickly brushes it aside and says that we should not be deterred--greater risks are at stake if we do not come a solution through a vaccine, even if it means more deaths along the way.

Personally, for such a highly valued man of ethics, I feel as if Caplan throws away the ethical issues present much too easily. How can he dismiss so readily the deaths which were caused by this vaccine? The participants were of course told that the vaccine was experimental but were also lead to believe that the vaccine was almost certain to be beneficial, or at worst would have a neutral effect. Never did these participants imagine that such a vaccine might actually give them HIV.

That being said, I do agree with Caplan that research should continue. However, I definitely think that more guidelines need to be put in place to ensure that a substantial "mishap" like this one does not occur again.

Source: http://www.msnbc.msn.com/id/22023841/

Sunday, April 13, 2008

Prison for the Sick

A recent New York Times article describes one of the most frightening images one can imagine: a hospital where patients are imprisoned by “three fences topped with coils of razor wire,” guards and more; they are encouraged to enter the hospital, but as patient Siyasanga Lukas describes, “the only discharge you get from this place is to the mortuary.” The hospital the article describes is the Jose Pearson TB Hospital in Port Elizabeth, South Africa. The hospital is specifically for patients with drug resistant forms of TB, ranging from multi-drug resistant to the most serious type, XDR-TB, an “extensively drug-resistant” strain of TB that kills most of its patients, especially in countries in which HIV and AIDS are prevalent.

XDR-TB is spread mainly through the air when patients cough or sneeze; therefore patients with XDR-TB have a high probability of spreading the disease when in public places, or even in their own homes. But does this mean that government officials have the right to lock up these patients in a hospital, isolated from their families and the rest of society? Health officials in Port Elizabeth argue that, “infected people cannot be relied on to avoid public places;” an argument that does hold weight (as we saw in the US a couple of years ago when a patient with multi-drug resistant TB boarded a flight to another country). As Dr. Bongani Lujabe describes the situation, “XDR is like biological warfare. If you let it loose you decimate a population, especially in poor communities with a high prevalence of HIV/AIDS.”

Despite the reasoning of the hospital officials, I would argue that imprisoning patients in a hospital is not the solution. Imprisoning the patients causes future patients with the disease to hide their illness, furthering the spread of the disease by not seeking treatment. As outlined in the article, officials should strive to treat patients in their own homes, and turn only to confined hospitals as a last resort. As Mrs. Hansen, a patient that previously escaped from Jose Pearson Hospital, states, “[N]othing can replace your freedom.”

Moral Status and Embryos

I remember that a certain classmate of mine mentioned that even though embryos are members of the human species, they deserve no moral status. Curious. This raised multiple questions in my mind. For example, what is different about embryos from fully developed human beings? Does this mean that human beings have no inherent value? From where, then, is moral status derived?

The only answer that I have encountered to solve this problem was Peter Singer’s. He states that self-awareness ought to be the standard by which the value of beings are judged, for only those who are self-aware can suffer, and only those who can suffer may hold personal interests. Yet this idea does not seem to make much sense to me either. To argue that personal interests are the standard by which moral status is derived from is to say that there exists a moral hierarchy, in which beings ought to be treated based upon what kind of interests they happen to have, rather than who or what they are. This would vary not only among different individuals, but also at different times. The very nature of moral status is at odds with this argument. Moral status is not something that is dependent upon circumstance – rather, it is the presence of a certain trait that makes one deserving of respect, acknowledgment, and equal treatment, among many other things, due to one’s ability to be a moral being. Thus, because an embryo is a member of the human species (albeit underdeveloped) and has the capacity to make moral judgments (George), it ought to be treated the same as one would treat a fully developed human being, for both have the same moral status.

Of course, Singer’s argument may not be the same used by those who would argue against the existence of moral status among the embryo population. Therefore, it is here that I lay the gauntlet down, in the hope that the issue of moral status among embryos may be further discussed and clarified.

Saturday, April 12, 2008

Killing the Seas to Fuel our Cars

Information taken from http://www.time.com/time/health/article/0,8599,1721693,00.html

Congress wants to produce 15 billion gallons of ethanol from corn by 2022. On the surface, this sounds like an environmentally-friendly idea to reduce our dependency on oil and other depleting natural resources. However, upon further inspection, such an increase in ethanol production actually has the potential to destroy our seas.

Increasing our ethanol production to 15 billion gallons means drastically increasing the amount of corn harvested in the US. That’s where the harm to the seas begins. Corn requires heavy fertilization, and a byproduct of that fertilization is nitrogen. The nitrogen from the fertilizer runs off the farms and into rivers and streams which eventually feed into the Gulf of Mexico. Streams have a natural ability to filter the nitrogen to an extent, but the amount of corn currently planted and which needs to be planted to meet the government’s goal exceeds the capability of the streams. The excess nitrogen runs into the Gulf of Mexico and becomes nourishment for algae. The more nitrogen run-off, the greater the amount of algae. Algae decomposition requires oxygen and therefore takes a large percentage of the oxygen in the Gulf, creating what scientists call a dead zone. Currently that zone is the size of New Jersey, but with the increase in corn and nitrogen-runoff (10-19%) the zone will increase to a level impossible to shrink.

I found this article interesting because it reveals a problem with a plan that seems like the solution to our energy problems. Corn, a natural product, contains the potential to fuel our nation. But, as it turns out, corn also has the potential to destroy our seas. So what do we do? We need to find some way to reduce our dependency on oil, coal, and natural gas, but even with new forms of “green” energy come problems. Although we will hopefully reduce our impact on the environment in many ways, we have no way to measure and even predict our potential effects.

Tuesday, April 8, 2008

Raising a Child with Prayers?

Ava Worthington died on March 2nd, 2008 as a result of bronchial pneumonia and a blood infection. Normally, such a case would be routine work -- give her a prescription of antibiotics, case closed. However, the complications come when her parents, fundamentalists from The Followers of Christ Church, refused to seek treatment for her, relying instead on prayer. This case is just one of at least 38 in which young children died of easily curable diseases as a result of parents who insist on prayer rather than conventional medicine.

The issue here is whether parents, who are normally granted proxy consent over their child, have a right to decide the treatment course of their child -- including prayer. Any mentally capable adult is able to decide for themselves their own treatment option, including none, if they so wish. Jehovah’s witnesses routinely refuse blood transfusions, for example. But should this autonomy extend to their children also? Or would this constitute an intrusion on their individual rights and religious beliefs? In this particular case, the Worthingtons were charged with manslaughter and criminal mistreatment – a charge Arthur Caplan approves of. According to Caplan, parents must place the value of their child’s life above that of their religion – “child neglect is still neglect, even when performed under the cover of religious faith.”

Here, I agree with Caplan’s opinion. It is true that modern medicine must be careful that we are not infringing too much on the rights of the people we are trying to protect – the issue of mandatory vaccinations which was brought up in a few earlier posts is a good example of this debate. However, I believe that this case is clear-cut – when the life of a human being is at stake, parents have a responsibility to get their children the assistance they require. To provide an extreme example, Madeline Neumann, another ‘prayer child’, suffered a month of nausea, excessive thirst, vomiting, and loss of mobility before she finally died from a treatable form of diabetes.


Article: http://www.dailynewstribune.com/opinion/x808351426

Monday, April 7, 2008

Siamese Twins: Kill One or Let Both Die?

Post inspired by this article: http://www.cbhd.org/resources/healthcare/hollinger_2000-09-14.htm

 

In 2000, conjoined twins were born in England and their medical status generated much concern.  This set was conjoined at the lower abdomen so that one of the girls, (lets call her Mary) was totally dependent on the other (Jodie) for cardiac and pulmonary support because the twins’ lungs and heart resided in Jodie’s part of the body.  The dilemma came when doctors informed the parents that if they kept the twins conjoined, they would both die in 6 months, but if they separated them, Debbie would die instantly but Jodie could live for much longer.  Difficult questions quickly arise: should the parents save Jodie by killing (should it be called that?) Mary?  Should both lives be treated as intertwined, with potential lifespan as an arbitrary and inapplicable concern, so that both girls should live as long as possible without inciting the (unnatural or pre-term death of one of the girls?  Who has the authority to decide this? 

 

The author of the article that incited this post, Dennis P. Hollinger, presented five reasons as to why the parents should elect to do the surgery and should attempt to save Jodie’s life at the expense of a few more months of Mary’s life.  I want to address his second point that because Mary would not be alive if she weren’t conjoined to her sister, it is justified to allow her to die by un-separating them because their connection is unnatural while separation, and thus its consequences, are natural.  I think that Hollinger’s argument missed the crucial point that Mary has mental activity and thus she is an autonomous and legitimate person.  Just because her organs are not hers (just like someone on life support or with organ transplants) does not mean that the benefits from those organs are illegitimate. 

 

 This case not only presents a very difficult and quite possibly a lose-lose situation but also a situation that, I feel, is mostly complicated because it has to juggle the divergent interests of the multiple parties.  Until we determine clearly who is in charge of these situations and what capacity of control they hold, the continued complexities will compound and thus we must continue to try to sort out the debate of what is ethical and who, especially in difficult situations, has the authority to decide what’s ethical.  

Guinea Pigging among Surrogate Mothers?

I never understood why any woman would volunteer to be a surrogate mother. Why would anyone carry another’s child? Or risk experiencing the mental or physical consequences of giving birth then having to give up the child that was inside one’s body for nine months? However, the same questions could be asked to any person giving up their body for human experimentation. Although these volunteers see financial incentives as their primary goal of becoming involved in surrogacy or human experimentation, there are other moral values that can come into play as well. For instance, Jennifer Cantor, a 34-year old woman with her own 8-year old daughter, claims that she gets pleasure from carrying a child, whether it is hers or not. She claims that there is no emotional attachment to the baby she gives birth to; she merely wants to help others who are unable to have children. In fact, there are an increasing number of American women – more since the attack on Iraq in 2003 and husbands left their young wives to go overseas – who volunteer to be surrogate mothers. In the past five years, the small percentage of all surrogate mothers reported to be 1,000 – a 30% increase from 2000. What is the cause of such popularization of surrogacy?

The reasons for this dramatic increase during war time may be due to a number of causes. Perhaps the absence of the husband leaves women needing to find means of economic support. In fact, a surrogate mother can earn up to $20,000 to $25,000! However, as mentioned before, financial gains are often not the incentives for the surrogate mothers; noble values of benevolence and sympathy drive women like Jennifer Cantor to help other women find ways to have their own babies – those who derived from their own genes. Then, a question arises similar to the one raised concerning “guinea pigging” effect. Could the potential for “guinea pigging” and hence subtle coercion be eliminated by eliminating the financial incentives to surrogate mothers?

Source: http://www.newsweek.com/id/129594

Malpractice suits

Malpractices suits are of grave concern in many fields of medicine. Obstetrics and gynecology is the biggest hitter, costing each OB/GYN $175,000 in malpractice insurance and are liable for malpractice up to 18 years after the delivered their final child. Many times, people take advantage of these malpractice laws in order to earn money on the physician’s behalf. Many choose to force their patients to sign waivers that remove their rights to file such a suit and if they fail to do so, then the doctor refuses his or her services to the patient.
The question lies in the ethical acceptability of such action. On one had, the doctor is trying to safeguard himself from unethical patients who just want to reek the most financial benefit. But what about those patients that he actually does harm, don’t they have a right to wreak the monetary compensation for his mistakes. But then, there is always the risk that the doctors will attempt to monopolize this malpractice risk and in order for any patient to get medical care they will have to sign off their rights without choice. After all, a doctor is just meant to help people and shouldn’t worry about the external risks or benefits, right?
Now, what an individual must decide is where the happy medium lies with this. Perhaps the papers should have disclaimers saying what is acceptable as a ground for a lawsuit and what isn’t. What do you think is a possible solution?

Terri Schiavo, Revisited

The upcoming campus visit (tomorrow, April 8th, Frist 302, 7:30 pm if anyone is interested) of Terri Schiavo’s brother, Bobby Schindler, has gotten me thinking again about the issue of euthanasia, or mercy killing, and whose decision it should be. I’m sure you all remember the epic battle between Terri Schiavo’s husband, Michael, and her parents over her life. Eventually, Michael won the right to remove Terri’s feeding tube and she died in March 2005, after spending over ten years in a “persistent vegetative state.”

Many of the articles I have come across online characterize Terri’s death as “horrific” and indicate that she was “cruelly starved to death and dehydrated.” There is no doubt that Terri died from lack of food and water, as she was able to survive without any help beyond a feeding tube. The controversy lies in whether or not her death was “cruel.” Because Terri did not leave a living will, her loved ones bickered over whether or not she would have wanted to die based on vague recollections of things she had said. For me, personally, I remember how much it sucked to be stuck on the couch for a week after I had my appendix out, effectively not being able to feed myself because I couldn’t get up, and I can be sure that I would not want to live in a persistent vegetative state, so brain damaged that I was not aware of my own existence.

I believe that severely brain damaged people are not alive anymore in the sense that they are of course living because their organs are functioning, but they no longer possess that which makes them truly human. I do not particularly believe in souls per se, but I feel that every person attains personhood through having a mind that can think and learn and create new ideas in and of itself. If someone’s mind is dead, they are no longer alive.

From there, the decision between life and death could have been left in the hands of either her biological family or her husband. Because Michael Schiavo had already moved on to a new life and had children with another woman, I do not think he should have been the one to make the decision regarding Terri’s future. Terri’s family was willing to pay all medical expenses to keep Terri alive, so she would not have been a burden to Michael in any way. I definitely believe that Terri was already dead in the most crucial sense of the word and I think that removing her feeding tube was the right decision for Michael to make. However, I also think that it may have been better for her family to make that final decision because they still had a strong emotional attachment to Terri and were willing to take care of her as necessary. Who are we to dictate what someone else’s family should do in that instance?

Overall, I think that this was an incredibly difficult decision and Terri’s case was incredibly unfortunate and of course everyone would have been better off if Terri had either died on the day she fell ill, or had never fallen into her vegetative state in the first place. I think that Terri’s parents should have been able to make the decision regarding her future as they had a more vested interest in her well being as Michael had already separated himself from Terri significantly. However, as the right to make a decision was given to Michael, I believe that he did make an appropriate decision.



http://jewishworldreview.com/cols/hentoff040308.php3
http://www.princeton.edu/~soapbox/vol2no4/24murray.html
http://www.princeton.edu/~paw/archive_new/PAW05-06/09-0308/notebook.html

Silly Americans, ADHD is for Kids…Not

According to the American Academy of Child and Adolescent Psychiatry, approximately 15% of grade school children can be diagnosed with ADHD, which has lead to a sevenfold increase in the production of Ritalin between 1991 and 1998. Because there are no biological tests for ADHD, diagnosis largely depends on reports from parents and teachers. Unfortunately, accounts from parents and teachers may not be entirely accurate; how can they differentiate between an active, energetic child and one who suffers from ADHD?

Compared to other countries, the incidence of ADHD in the United States is especially high. In Japan, for example, ADHD has not achieved the label of a disorder like it has in the United States. The Japanese view the “symptoms” of ADHD as temporary childhood characteristics that all individuals eventually grow out of. Americans, on the other hand, do not share the same perception. In fact, most Americans view ADHD as permanent disabilities, meaning that children diagnosed with ADHD will carry the burden of ADHD for the rest of their lives.

I believe that the common misconception in America regarding ADHD revolves around our inability to accurately diagnose the “disorder” and our hastiness in turning to medications to correct problems. America has fallen into the trap of believing that ADHD is a common “disorder” thereby leading to its over diagnosis. Part of the problem with the high incidence rate of ADHD is that society fosters the diagnosis of the “disorder” by relying heavily on medications (Ritalin) to “cure” undesired traits associated with young children. ADHD may essentially serve as a scapegoat for parents to better control their children. This scapegoat will only continue to grow unless Americans remove the stigma that undesired childhood characteristics spell ADHD.

References:

Donovan, Denis M. “An Alternative Approach to ADHD.” The Harvard Mental Health Letter May 2000: 5-7.

Wednesday, April 2, 2008

It's a bird..it's a plane..it's a human-cow baby?

In Britain, they have recently created human-cow embryos using cow egg cells. They claim that their aim is not to make human-cow hybrids but to use such embryos for stem cells. This is part of the bigger goal of creating organs as part of the booming field of regenerative medicine. We don't, however, know what these human-cow embryos really could amount to. Based upon biological predictions, successful animal-human embryos of this sort could not be made but it has not been entirely investigated.

Scientists who advocate the fertilization of cow egg cells with human DNA do so for two reasons: one being that we must save human egg cells. Such cells are "precious" and have been destroyed too often in the process of research. Another reason is that they believe that the negative stigma surrounding the debate of stem cells lies mostly in the fact that human stem cells are being used. Arthur Caplan is quoted in the article (big surprise) as saying that he "sees no risk in making 'monsters' [aka human-cow embryos] this way."

Numerous complications can be seen with this method. Is it really true that all of the negative connotations associated with embryos used for stem cells would just disappear? Afterall, the embryo is still part human. It is unlikely in the highly controversial subject of stem cells that negative attitudes would dissipate. The ethical controversies of stem cell research are complex and therefore cannot be solved using a simple solution, such as removing the human egg cell component. In addition, it is likely that more ethical issues will be created in using animal and human embryos. Animal rights activists may have something to say about animal DNA being used for the production of stem cells. Others may simply fear the combination because it is "unnatural."

The question remains: should this type of experimentation be allowed even though we do not know the outcomes? Will it help solve the need for stem cells by eliminating some of the controversial aspects (such as destroying a potential human fetus)? Or instead, will more ethical issues arise?

http://news.yahoo.com/s/nm/20080402/sc_nm/cloning_cows_dc;_ylt=Ag0w0E0eYSI3G2F6JJBOy2eJhMgF

Tuesday, April 1, 2008

Sex Selection in the US

This post was inspired by the article: "Some Asian Families in the US Choosing Sons" found on http://ap.google.com/article/ALeqM5jIOvYV1zOH5fKHW5lqNFlR3RhZ8AD8VOLE502

This article reveals that some Asian families are using sex selection techniques to increase their chances of having a son, especially if their first child is a girl.

The main problem highlighted in this article is that the sex selection techniques are simply a fetal ultrasound to discover the sex of the baby, and then abortion if it is a girl. I don't want to get into the ethics of abortion here, so I want to discuss the implications of sex selection in general.

There are ways of increasing the probability of having a child of particular gender, but suppose you could pick for certain. However, you could only pick if you already had a child of the opposite sex. Therefore, you could only pick a boy if you already had a girl and vice versa.

I wouldn't have a problem with this at all. There are practical reasons why a parents would want to have a balance, and there are also practical reasons why parents would want to have a boy (to carry on the family name, manual labor, etc.) There are also practical reasons why a family would want to have a girl if their first child was a boy. I don't agree with Sandel and May in their argument that such a selection would remove the humility of parenthood and their general argument about "openness to the unbidden". You are not choosing the child's traits, simply what gender they are. And it is not like the parents have full control. They would not be able to choose to have a family of four boys.